Camara and Anaya, 2010 |
Anaya is terminally ill with Krabbe Leukodystrophy. This rare disease causes demylination in the brain due to lack of a specific enzyme required to metabolize fats.
The outlook for kids with Krabbe is bleak. In most cases a baby diagnosed with infantile Krabbe will develop normally for a few months and then lose their motor skills, the ability to hold their heads up, the ability to smile, laugh or speak, followed by loss of sight and hearing. Seizures may or may not occur and average life expectancy is less than 2 years.
Anaya's condition makes it impossible for her to tolerate or process food or formula, so Camara is asking for donations of breast milk to help her feed her daughter. If you, or someone you know can help with a donation, please follow the links below to learn more.
Poor little darling. Her mother is a true warrior.
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